PEDNET-LC: A Pediatric Network for Medical Care and Research of COVID-19 Sequelae (PASC), Similar Post-acute Infection and Vaccination Syndromes (PAIVS), and ME/CFS

Prof Uta Behrends presented the project "PEDNET-LC: A pediatric network for health care and research on post-COVID syndrome, similar post-acute infection and vaccination syndromes (PAVIS), and ME/CFS." This nationwide project focuses on the care of children and adolescents with ME/CFS, as well as children and adolescents with complex Long COVID with Post-exertional Malaise (PEM) and participation deficits. The project involves interdisciplinary collaboration between various disciplines, involving patients, their parents, schools, and health insurance companies. Central elements include the establishment of an overarching coordination office and specialised contact points in each federal state, telemedicine structures, a registry study, and the analysis of the economic costs of the disease.