International ME/CFS Conference 2025

Videos

Charité – Universitätsmedizin Berlin and the ME/CFS Research Foundation organised the “International ME/CFS Conference 2025“ on 12-13 May 2025 in Berlin. The event was directed at medical professionals, researchers and interdisciplinary experts in the fields of medicine and biology.


In addition to presentations, the two-day conference featured more than 40 scientific posters. Among the posters, 3 outstanding contributions were awarded poster prizes by the ME/CFS Research Foundation via a scientific jury.

Videos, slides and short summaries (the latter provided in cooperation with the German Association for ME/CFS) of the presentations from the conference can be accessed on this website by clicking on one the presentation titles below. Some videos and slides may not be available or may be released later, due to limitations regarding unpublished data from ongoing research.

All presentations were held in English. For the videos, automatically generated subtitles are available via Youtube.

Introduction

Welcome

Welcome

Carmen Scheibenbogen
Charité – Universitätsmedizin Berlin, Germany
Infection-Associated Chronic Illnesses (IACIs)

Infection-Associated Chronic Illnesses (IACIs)

David Putrino
Icahn School of Medicine at Mount Sinai, New York, USA
Where have we made progress?

Where have we made progress?

Carmen Scheibenbogen
Charité – Universitätsmedizin Berlin, Germany

Care for ME/CFS

PEDNET-LC

PEDNET-LC

Uta Behrends
Technical University of Munich (TUM) Hospital and Munich Schwabing Clinic, Germany
Reference Center for Post-viral Syndromes

Reference Center for Post-viral Syndromes

Kathryn Hoffmann
Medical University of Vienna, Austria
The Akureyri Clinic

The Akureyri Clinic

Fridbjörn Sigurdsson
Landspitali - University Hospital, Reykjavik, Iceland
CFS_CARE

CFS_CARE

Claudia Kedor
Charité – Universitätsmedizin Berlin, Germany
Clinical care for ME/CFS

Clinical care for ME/CFS

Michael Stingl
Dr. Michael Stingl Private Practice, Austria
Long/Post-COVID Off-Label-Use of Drugs

Long/Post-COVID Off-Label-Use of Drugs

Bernhard Wörmann
Charité – Universitätsmedizin Berlin, Germany
Severe, and very severe ME/CFS in Norway

Severe, and very severe ME/CFS in Norway

Kristian Sommerfelt
University of Bergen, Norway

Posters

Functional Connectivity Alterations in ME/CFS

Functional Connectivity Alterations in ME/CFS

Guido Cammà
Charité – Universitätsmedizin Berlin, Germany
Reduced Abundance of Gut Bacteria in ME/CFS

Reduced Abundance of Gut Bacteria in ME/CFS

Wiebke Löhden
Kiel University (CAU), Germany
Handgrip Strength in Children with ME/CFS

Handgrip Strength in Children with ME/CFS

Lorenz Mihatsch
Technical University of Munich (TUM), Germany
Raman Spectroscopic Profiling of Immune Cells

Raman Spectroscopic Profiling of Immune Cells

Christian Puta
Friedrich Schiller University Jena, Germany
Skeletal Muscle in ME/CFS and Post-COVID

Skeletal Muscle in ME/CFS and Post-COVID

Anouk Slaghekke
Vrije Universiteit (VU) Amsterdam, Netherlands

Understanding I: Cardiovascular dysregulation and mitochondrial pathology

Circulatory dysfunction in ME/CFS

Circulatory dysfunction in ME/CFS

David Systrom
Brigham and Women's Hospital and Harvard Medical School, Boston, USA
Skeletal muscle alteration in Long COVID and ME/CFS

Skeletal muscle alteration in Long COVID and ME/CFS

Rob Wust
Vrije Universiteit (VU) Amsterdam, Netherlands
Changes in Mitochondria in Muscle

Changes in Mitochondria in Muscle

Jürgen Steinacker
Institute of Rehabilitation Medicine Research at Ulm University, Germany
Mechanisms of Post-Exertional Malaise (PEM)

Mechanisms of Post-Exertional Malaise (PEM)

Christian Puta
Friedrich Schiller University Jena, Germany
Changed patterns of blood metabolites

Changed patterns of blood metabolites

Karl Johan Tronstad
University of Bergen, Norway

Understanding II: Immune dysregulation and autoimmunity

Autoimmunity as a cause of ME/CFS

Autoimmunity as a cause of ME/CFS

Jeroen den Dunnen
Amsterdam University Medical Center (UMC), Netherlands
GPCR autoantibodies and brain alterations

GPCR autoantibodies and brain alterations

Takashi Yamamura
National Center of Neurology and Psychiatry (NCNP), Tokyo, Japan
Autoantibodies mimicking EBV sequences

Autoantibodies mimicking EBV sequences

Franziska Sotzny
Charité – Universitätsmedizin Berlin, Germany
Autoantibodies to neuronal antigens

Autoantibodies to neuronal antigens

Christiana Franke
Charité – Universitätsmedizin Berlin, Germany
T and B cell responses in ME/CFS

T and B cell responses in ME/CFS

Birgit Sawitzki
Charité – Universitätsmedizin Berlin, Germany
Transcriptome analysis in ME/CFS

Transcriptome analysis in ME/CFS

Anna Aschenbrenner
German Center for Neurodegenerative Diseases (DZNE), Bonn, Germany

Treatment I: Clinical trials targeting autoantibodies

Drug treatment - What have we learned since 2007?

Drug treatment - What have we learned since 2007?

Olav Mella
University of Bergen, Norway
Plasma cell targeting by daratumumab in ME/CFS

Plasma cell targeting by daratumumab in ME/CFS

Øystein Fluge
University of Bergen, Norway
B cell depletion targeting CD19

B cell depletion targeting CD19

Judith Bellmann-Strobl
Charité - University Medicine Berlin, Germany
Rituximab trial in Japan

Rituximab trial in Japan

Wakiro Sato
National Center of Neurology and Psychiatry (NCNP), Tokyo, Japan
Efficacy of repeated immunoadsorption in ME/CFS

Efficacy of repeated immunoadsorption in ME/CFS

Elisa Stein
Charité – Universitätsmedizin Berlin, Germany
Immunoadsorption in severe ME/CFS patients

Immunoadsorption in severe ME/CFS patients

Georg Schlieper
Dialysis Hannover - Center for Kidney, Hypertension and Metabolic Diseases, Germany

Treatment II: Clinical trials

IgG therapy in ME/CFS and Post-COVID Syndrome

IgG therapy in ME/CFS and Post-COVID Syndrome

Nina Babel
Charité – Universitätsmedizin Berlin, Germany
Hyperbaric Oxygen Therapy (HBOT) in ME/CFS

Hyperbaric Oxygen Therapy (HBOT) in ME/CFS

Laura Kim
Charité – Universitätsmedizin Berlin, Germany
Anhydrous Enol-Oxaloacetate Treatment of ME/CFS

Anhydrous Enol-Oxaloacetate Treatment of ME/CFS

Alan Cash
Terra Biological LLC, USA
Viral persistence in Post-COVID Syndromes

Viral persistence in Post-COVID Syndromes

Michael Peluso
University of California San Francisco (UCSF), USA
LDN and Mestinon in ME/CFS and Long COVID

LDN and Mestinon in ME/CFS and Long COVID

David Systrom
Brigham and Women's Hospital and Harvard Medical School, Boston, USA
Low-dose Rapamycin for Long COVID

Low-dose Rapamycin for Long COVID

David Putrino
Icahn School of Medicine at Mount Sinai, New York, USA
Exercise Intolerance and Therapeutic Strategy

Exercise Intolerance and Therapeutic Strategy

Klaus Wirth
Mitodicure GmbH, Germany

Sponsors

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